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Traditional hospitalisation versus homecare: analysis of choice and its repercussions on the cystic fibrosis child's family. The case of the intravenous antibiotic treatment, from the maternal point of view M. Kerbrat, CF Centre of Roscoff, France
The treatment of intravenous antibiotherapy, marking a dreaded stage in the evolution of the disease, can be carried out in traditional hospitalisation (TH) or in home care (HC). The objective is identify psychological elements leading CF children's mothers to prefer TH or HC, then consequences of their choice. After having recalled the medical and psychological aspects of cystic fibrosis, a library search on the topic of the hospitalisation of the children makes it possible to pose some starting assumptions. The method used to verify them is based on semi-directing talks in the local setting (N=14), and on a questionnaire at the national level (N=115), targetted to mothers of children aged from two to fourteen years. The analysis by themes of the contents of the talks and the comparative statistic analysis of the results of the questionnaires make it possible to pose various results: the choice is strictly depending on the mother's age, on the paternal level of study, on the systematisation of the treatments, on the number of previous IAT, on the home's fitting out, on the information about the disease. The choice has consequences on the feelings of anguish and depression, on the friendly network, on the leisure activities, on the relations between mothers and siblings. Motivations are essentially based on practical considerations. They are depending on the child and his family's well-being, on better care, on a easier organization, on the desire of investment, on the representation of the disease. Conclusion: no psychological profile distinguishes mothers choosing the TH of those opting for the HC. The repercussions of IAT don't differ fundamentally according to the chosen modality. TH often appears as a period pre-HC. These types of study, as well as the intervention, on the field, of psychologists, are major keys to make a real advantage of the chosen modality for all the protagonists, especially in term of quality of life.
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